I found the following December 7 BBC story, The invention that helped me write again, from a posting on a Facebook page for Young Onset PD (YOPD). The article, which includes a cool 3 minute video, shows how a special vibrating wrist-band can greatly reduce the hand tremors of Emma, a young woman with YOPD, to the point where she can do graphic design again. The effects of this device are pretty spectacular. Apparently it was inspired by spoons that can reduce tremors through a feedback vibration. I have not been able to find out any information on availability as a commercial device though.
John Schappi is his name. He was diagnosed with PD at age 80 in 2009. In 2010, he started his blog, Aging and Parkinson’s and Me, that won healthLine’s 2016 Blog of the Year award in the category of Best Parkinson’s Disease Blogs. In total he has written over 1200 posts and is still going strong with almost 100 in 2016.
These are not quick one-liners either. The one’s that I looked at are well thought out and content a wealth of information and links to other information.
Here are some of my favourites from the few dozen that I have looked through so far. (Maybe someone will organize these into multi-volume set with table of contents and index.)
In which he lists the proven therapies that have helped him the most. One of them has its own blog post from 2013 and is called: “BIG” Exercises for Parkinson’s.
This is the post that I found when I was looking for information on drumming and PD. He didn’t know much about drumming before but he certainly does his homework.
John talks about how relationships are what keep more people healthy, not money or stuff.
John’s blog is an amazing resource and, courtesy of the blogspot framework that it is built on, fully searchable. I will definitely be referring back to it in future posts.
The videos of the four presentations given at the November 5, 2016 Regional Conference in Victoria are now online at the Parkinson Society BC website at the following location:
There are a lot of links from other conferences on this page so I’ve pulled out the relevant ones and put them below in presentation order with duration times and links that open in a new tab or window.
- Parkinson’s Overview [1h 3m 33s], Dr. Silke Cresswell
- Sleep and Parkinson’s [34m 31s], Dr. Jason Valerio
- Food for Thought: Diet & Nutrition in PD [49m 40s], Dr. Laurie Mischley, ND, PhD, MPH
- The Benefits of Mindful Living [30m 35s], Michelle Fraleigh, MBA, MA, CCC, RCC
They are worth listening to. One of my favourite quotes comes from Laurie Mischley’s talk:
We’re really good at hiding your symptoms while your disease progresses, but we are really bad at changing the rate of disease progression … we are celebrating the 200th year anniversary next year and we don’t have a single therapy other than exercise that has been shown to slow disease progression.
CBC’s The Current aired a show on Thursday, October 27, 2016 called How ‘plastic’ brain can heal from traumatic injuries. There is a link provided to listen to the segment.
The same evening a show called The Brain’s Way of Healing aired on The Nature of Things. Though not specifically focussed on Parkinson’s disease much of what they say is relevant.
Two members of the Nanaimo Parkinson’s Support Group (Susan Aronson and Kevin Hood) attended the World Parkinson’s Congress in Portland Oregon from September 20 to 23. We presented our summary of the conference at the October 18 Monthly Meeting. We wanted to make our presentation notes available to anyone who is interested so here are some instructions for how to get all of the bits.
Note: The presentation is based on our own understanding of and interest in the topics and should not be used as the basis for changing behaviour, diet or medications without first consulting with your family doctor or neurologist.
“WPC 2016 Portland OR, Sept 20 – 23” Presentation
WPC 2016 short videos.
Videos used in PowerPoint presentation.
- Parkinson’s Pedaling with Nan by Nan Little (USA).
- Determination by Alfredo Ruiz (Puerto Rico).
- Dance Through Life by Rafi Elder (Israel).
- PD Movement Lab by Pamela Quinn (USA).
- Like a Wall by Lauren Tietsort/PRO (USA).
Other WPC 2016 short videos.
- World of Possibility by Arlon Bennett (USA).
- When You Walk, I Can See by Eros Bresolin (UK).
- Victory by Lori Campbell (USA).
- Expanding the WORLD of the World Parkinson Congress by Marcus Cranston (USA).
- I Will Choose by Dora Leonard & Erika Snider (USA).
- I am the beat of another song by Claudia Martinez (USA).
- PD PSA: A Letter to the ER by Jennilyn Merten (USA).
WPC 2016 congress videos.
WPDF of WPC 2016 poster “What neurologists wish patients with Parkinson’s disease knew” by Rachel Schwartz. Used with permission.
We are proud to launch our website for the Nanaimo Parkinson Support Group (NPSG).
Until now, the group, which has existed for several years, has been communicating via email, phone and monthly meetings. One of our members, John Watt, has been tirelessly keeping the information flowing even as the support group membership has grown and the amount of information being distributed has increased.
At the October 18, 2016 Monthly Meeting a presentation was given of the highlights from the recent WPC 2016 conference that was held in Portland Oregon. A promise was made to make the presentation slides and other related information available after the meeting. Distributing the large files by email was not feasible and the idea of a website with links for downloading and viewing the files was the result.
We hope that you find the site useful and welcome your comments and suggestions about how to make the site better.
November 14, 2016