HeadWay, aka the Victoria Epilepsy & Parkinson’s Centre, recently sponsored a talk by Dr. Jonathan Squires on medication management in PD. A copy of his slides are available as a PDF at the following link:
An NBC news article on cycling and Parkinson’s disease was brought to my attention by one of our members. Thanks Susan! The research shows that a few hours of ‘intense’ cycling a week can relieve PD symptoms. In fact the article says: “(cycling) can even do something that medicine can’t – slow down the progression of the disease itself.” As the neuroscientist Jay Alberts at Cleveland Clinic says: “Exercise is, in fact, medicine.”
Jay founded an organization called “Pedaling for Parkinson’s” which promotes cycling for managing PD symptoms and has helped set up numerous cycling programs at YMCAs across America.
Hmmm! Maybe we should be running PD cycling classes here in Nanaimo…
Drumming (therapy) classes for PWP (Persons with Parkinson’s) is coming to Nanaimo.
After a successful demonstration at the February PD Support Group, the first of four weekly hour-long classes will take place on Wednesday March 1 2017 at 3pm. If all goes well and interest is good, there will be more sessions to follow.
Lessons will be led by Dave McGrath, a local Nanaimo drummer who also makes his own African style hand drums which we will use for the lessons. If you are interested in participating or just want more information and you are not a member of the support group (in which case you would have received an invitation email from us) then send us a message through the Contact Menu.
Drum therapy is an ancient approach that uses rhythm to promote healing and self-expression. From the shamans of Mongolia to the Minianka healers of West Africa, therapeutic rhythm techniques have been used for thousands of years to create and maintain physical, mental, and spiritual health.
Current research is now verifying the therapeutic effects of ancient rhythm techniques. Recent research reviews indicate that drumming accelerates physical healing, boosts the immune system and produces feelings of well-being, a release of emotional trauma, and reintegration of self.
Other studies have demonstrated the calming, focusing, and healing effects of drumming on Alzheimer’s patients, autistic children, emotionally disturbed teens, recovering addicts, trauma patients, and prison and homeless populations. Study results demonstrate that drumming is a valuable treatment for stress, fatigue, anxiety, hypertension, asthma, chronic pain, arthritis, mental illness, migraines, cancer, multiple sclerosis, Parkinson’s disease, stroke, paralysis, emotional disorders, and a wide range of physical disabilities.
The article goes on to say:
Drumming Accesses the Entire Brain
The reason rhythm is such a powerful tool is that it permeates the entire brain. Vision for example is in one part of the brain, speech another, but drumming accesses the whole brain. The sound of drumming generates dynamic neuronal connections in all parts of the brain even where there is significant damage or impairment such as in Attention Deficit Disorder (ADD). According to Michael Thaut, director of Colorado State University’s Center for Biomedical Research in Music, “Rhythmic cues can help retrain the brain after a stroke or other neurological impairment, as with Parkinson’s patients…” The more connections that can be made within the brain, the more integrated our experiences become.
I’ve been to several of Dave McGrath’s evening group lessons and they are both fun and challenging – good exercise for the brain and the arms.
John Schappi is his name. He was diagnosed with PD at age 80 in 2009. In 2010, he started his blog, Aging and Parkinson’s and Me, that won healthLine’s 2016 Blog of the Year award in the category of Best Parkinson’s Disease Blogs. In total he has written over 1200 posts and is still going strong with almost 100 in 2016.
These are not quick one-liners either. The one’s that I looked at are well thought out and content a wealth of information and links to other information.
Here are some of my favourites from the few dozen that I have looked through so far. (Maybe someone will organize these into multi-volume set with table of contents and index.)
There are a lot of links from other conferences on this page so I’ve pulled out the relevant ones and put them below in presentation order with duration times and links that open in a new tab or window.
They are worth listening to. One of my favourite quotes comes from Laurie Mischley’s talk:
We’re really good at hiding your symptoms while your disease progresses, but we are really bad at changing the rate of disease progression … we are celebrating the 200th year anniversary next year and we don’t have a single therapy other than exercise that has been shown to slow disease progression.
Two members of the Nanaimo Parkinson’s Support Group (Susan Aronson and Kevin Hood) attended the World Parkinson’s Congress in Portland Oregon from September 20 to 23. We presented our summary of the conference at the October 18 Monthly Meeting. We wanted to make our presentation notes available to anyone who is interested so here are some instructions for how to get all of the bits.
Note: The presentation is based on our own understanding of and interest in the topics and should not be used as the basis for changing behaviour, diet or medications without first consulting with your family doctor or neurologist.