John Schappi is his name. He was diagnosed with PD at age 80 in 2009. In 2010, he started his blog, Aging and Parkinson’s and Me, that won healthLine’s 2016 Blog of the Year award in the category of Best Parkinson’s Disease Blogs. In total he has written over 1200 posts and is still going strong with almost 100 in 2016.
These are not quick one-liners either. The one’s that I looked at are well thought out and content a wealth of information and links to other information.
Here are some of my favourites from the few dozen that I have looked through so far. (Maybe someone will organize these into multi-volume set with table of contents and index.)
My Parkinson’s HoneyMoon is Over. What Now?
In which he lists the proven therapies that have helped him the most. One of them has its own blog post from 2013 and is called: “BIG” Exercises for Parkinson’s.
Drumming for Parkinson’s
This is the post that I found when I was looking for information on drumming and PD. He didn’t know much about drumming before but he certainly does his homework.
Good Relationships Are Key to a Happy Life. Loneliness Kills
John talks about how relationships are what keep more people healthy, not money or stuff.
John’s blog is an amazing resource and, courtesy of the blogspot framework that it is built on, fully searchable. I will definitely be referring back to it in future posts.
The videos of the four presentations given at the November 5, 2016 Regional Conference in Victoria are now online at the Parkinson Society BC website at the following location:
There are a lot of links from other conferences on this page so I’ve pulled out the relevant ones and put them below in presentation order with duration times and links that open in a new tab or window.
- Parkinson’s Overview [1h 3m 33s], Dr. Silke Cresswell
- Sleep and Parkinson’s [34m 31s], Dr. Jason Valerio
- Food for Thought: Diet & Nutrition in PD [49m 40s], Dr. Laurie Mischley, ND, PhD, MPH
- The Benefits of Mindful Living [30m 35s], Michelle Fraleigh, MBA, MA, CCC, RCC
They are worth listening to. One of my favourite quotes comes from Laurie Mischley’s talk:
We’re really good at hiding your symptoms while your disease progresses, but we are really bad at changing the rate of disease progression … we are celebrating the 200th year anniversary next year and we don’t have a single therapy other than exercise that has been shown to slow disease progression.
Two members of the Nanaimo Parkinson’s Support Group (Susan Aronson and Kevin Hood) attended the World Parkinson’s Congress in Portland Oregon from September 20 to 23. We presented our summary of the conference at the October 18 Monthly Meeting. We wanted to make our presentation notes available to anyone who is interested so here are some instructions for how to get all of the bits.
Note: The presentation is based on our own understanding of and interest in the topics and should not be used as the basis for changing behaviour, diet or medications without first consulting with your family doctor or neurologist.
“WPC 2016 Portland OR, Sept 20 – 23” Presentation
PDF version of PowerPoint slides.
WPC 2016 short videos.
Videos used in PowerPoint presentation.
Other WPC 2016 short videos.
WPC 2016 congress videos.
WPDF of WPC 2016 poster “What neurologists wish patients with Parkinson’s disease knew” by Rachel Schwartz. Used with permission.